First, some housekeeping notes:
November is Epilepsy Awareness Month.
The Infantile Spasms Community on Facebook, is recognizing November 3-9 as Infantile Spasms Awareness Week. The professional community is recognizing December 6-10 as Infantile Spasms Awareness Week. This is sponsored by the Child Neurology Foundation.
I intend to share stories from people affected directly or indirectly from epilepsy. If you would like to share your story of how epilepsy touched you or your family, please contact me at ken lininger @ gmail com. (no spaces in the name)
Many of you know, we did battle IS in the beginning. Savanna exhibited classic signs of Focal Cortical Dysplasia. That is, intractable simple/complex partial seizures even though successfully controlling the IS.