Resources

Epilepsy Technical Information:

Cleveland Clinic Epilepsy Program

Mischer Neuroscience Institute at the Texas Epilepsy Center – UT – Memorial Herman – TMC

UT Physicians affiliated with Memorial Hermann Hospital

         Dr. Gretchen Von Allmen

___Dr. Nitin Tandon

Information about MagnetoEncephalography  (MEG study)

Support for…

Epilepsy Foundation of Texas

Epilepsy dot com

Epilepsy Facts and Figures courtesy of CURE

3 thoughts on “Resources

  1. Hi Ken. I enjoy the heartfelt way you communicate your journey. You seem super informed so there’s probably not much I can share with you that you don’t already know but I thought of Savanna when I came across this article. It’s about a drug I have followed for years (through trials & studies) in regards to my daughter’s journey with Tuberous Sclerosis. I’m excited to see some positive secondary benefits (seizure reduction) being studied. Anyway, it is an exciting (although scary) drug for the TS community and it might transition over to non-TS epilepsies in the future so I thought I would share. Congrats on Savanna’s 4 months of seizure freedom! Best wishes- Kim

    Btw… the study is a collaboration btwn Cincinnati Children’s & Texas Children’s (Houston). If I remember right… that’s your neck of the woods.

    http://www.newswise.com/articles/drug-shows-dramatic-reduction-in-seizures-in-patients-with-tuberous-sclerosis-complex

    Like

    • Hi Kim,

      Thanks so much for sharing. I did not know about this drug, and found the article very interesting. Do you have a blog about your family’s journey? Yes we are in Houston, just over a year now!

      Warm regards,

      -ken

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s