4 months since complete TPO resection. No seizures that we know about.
This is great news. 6 months is the industry bellwether. Seizure freedom 6 months after a surgical treatment to remove a seizure focus, generally indicates an upcoming long Honeymoon period if not permanent cessation of the seizures. Specifically, it means the dysplastic lesion was completely resected.
Savanna’s blog has a new page titled “Savanna’s Story“. I have re-written her story from start to finish. It is not a compilation of the posts. Those of you who have met Savanna along her journey or have known her from the beginning, I invite you to read her entire story here. “Like” it, if you choose.
Also, I have upgraded the “About Savanna” page to an abbreviated timeline of events, with a little commentary at the end.
Thanks for all your prayers, support, and comments,
-ken
Thanks Ken Dad
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Hi there,
Your welcome, but I know I didn’t share too many current details. She is doing great. WE use the AFO’s every day now twice a day, and it is helping. She isn’t saying anything else yet, but babbling a little more. And, finally, she is eating okay. We still need to supplement her diet with formula or at least liquid, bit she seems to like to eat at least a limited diet.
Take care,
Ken
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So glad the seizure free period is continuing! By the way, you won a free copy of Leaders Open Doors in my giveaway. You can e-mail me at pin.the.map@gmail.com and I will pass your address along to his PR agent to mail your copy.
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